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UN ESCAP Workshop on Women and Disability: Promoting Full Participation of Women with Disabilities in the Process of Elaboration on an International Convention to Promote and Protect the Rights and Dignity of Persons with Disabilities
18-22 August 2003, Bangkok, Thailand

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Materials : Reference Documents

Economic and Social Commission for Asia and the Pacific

Pathfinders:
Towards Full Participation and Equality of Persons with Disabilities in the ESCAP Region

Part 1 of 5 : Part 1 | Part 2 | Part 3 | Part 4 | Part 5

Social Policy Paper No. 2

graphic of flower and beePrinted in Bangkok January 2002 - 950

United Nations publication Sales No. E.02.II.F.19 Copyright © United Nations 2001 ISBN: 92-1-120079-2 ST/ESCAP/2170

United Nations ST/ESCAP/2170
UNITED NATIONS PUBLICATIONS
Sales No. E.02.II.F.19
Copyright © United Nations 2001
ISBN: 92-1-120079-2

The designations employed and the presentation of the material in this publication do not imply the expression of any opinion whatsoever on the part of the Secretariat of the United Nations concerning the legal status of any country, territory, city or area, or of its authorities, or concerning the delimitation of its frontiers or boundaries.

The opinions, figures and estimates set forth in this publication are the responsibility of the author, and should not necessarily be considered as reflecting the views or carrying the endorsement of the United Nations.

Mention of firm names and commercial products does not imply the endorsement of the United Nations.


FORWARD

The Asian and Pacific Decade of Disabled Persons, 1993-2002, proclaimed on 23 April 1992, has been a significant programme of the Economic and Social Commission of Asia and the Pacific (ESCAP) for the past nine years. As I have worked to revitalize ESCAP our work focus has been redirected towards three overriding themes: poverty reduction, managing globalization and emerging social issues. Disability is a cross-cutting issue affecting all three themes. Recent World Bank estimates suggest disabled persons may account for as many as one in five of the world’s poorest persons. Disability limits access to education and employment, and leads to economic and social exclusion. Poor people with disabilities are caught in a vicious cycle of poverty and disability, each being a cause as well as a consequence of the other. Rapid advancement of information and technology, an important aspect of globalization, also affects persons with disabilities both positively and negatively. As an implementation strategy, ESCAP particularly focuses on disability as a flagship programme in emerging social issues and continues to support member and associate member governments in their endeavours to protect the rights of people with disabilities and to promote their full participation and equality in their national development process.

The Asian and Pacific Decade of Disabled Persons will enter its tenth and final year in 2002. A rigorous evaluation process is underway to evaluate the achievements in the implementation of the Agenda for Action for the Asian and Pacific Decade of Disabled Persons. The results will be reviewed at an Intergovernmental High-level Meeting, which will be convened in October 2002, in Otsu, Shiga Prefecture, Japan, to conclude the Decade. This publication “Pathfinders: Towards the Full Participation and Equality of Persons with Disabilities in the ESCAP Region” will form part of the evaluation of Decade achievements.

The purpose of this publication is to disseminate and share the many examples and initiatives of good practice that have been undertaken by governmental and non-governmental agencies in the ESCAP region. These examples provide detailed description of the challenges faced, the solutions found and the lessons learned in the implementation of the Agenda for Action for the Asian and Pacific Decade of Disabled Persons. They provide the basis for further inspiration and replication. I would like to express my appreciation for the contribution of the members of the Thematic Working Group on Disability-related Concerns. I extol particularly the initiatives of the non-governmental agencies (NGOs). NGOs are, and always have been, an important partner in the endeavour to achieve equality of opportunity and full participation for persons with disabilities in the ESCAP region.

The case studies presented in this publication reflect an important aspect of the achievements of the Asian and Pacific Decade of Disabled Persons. Many of the case studies describe the impact and improvement in the quality of the daily life of individual persons with disabilities. In his Nobel Lecture, delivered in Oslo, 10 December 2001, the Secretary General of the United Nations enjoined us, as never before, to look beyond the framework of States and focus on improving the conditions of the individual men and women, girls and boys. The focus of the Asian and Pacific Decade of Disabled Persons, for the past nine years, has been on improving the quality of the lives of individual men and women, girls and boys with disabilities in the ESCAP region. Some of their stories are presented in this publication.

December 2001

Kim Hak-Su Executive Secretary


CONTENTS

Forword

Introduction

PART ONE: NATIONAL COORDINATION AND LEGISLATION

I. Overview of national coordination and legislation

II. The National Disability Forum of Bangladesh

III. The Disability Action Council of Cambodia

IV. Eliminating discrimination through legislation in Hong Kong, China

PART TWO: PUBLIC AWARENESS, ACCESSIBILITY AND COMMUNICATION

V. Overview of public awareness, accessibility and communication

VI. Accessibility in Malaysia: Disability awareness training for local government technical personnel

VII. Let’s make the world accessible: Barrier-free tourism in India

PART THREE: EDUCATION, TRAINING AND EMPLOYMENT

VIII. Overview of education, training and employment

IX. Integrated education in Gujarat

X. Traditional Thai massage: Vocational training for blind persons in Thailand

XI. Mushroom production for people with disabilities

PART FOUR: PREVENTION OF CAUSES OF DISABILITY AND REHABILITATION: COMMUNITY-BASED REHABILITATION AND SOCIAL DEVELOPMENT

XII. Overview of prevention of causes of disability and rehabilitation: community-based rehabilitation and social development

XIII. Community-based approach to early intervention for children with disabilities: The KAMPI experience

XIV. Lovely’s story: A case study from the Centre for the Rehabilitation of the Paralysed in Bangladesh

PART FIVE: SELF-HELP ORGANIZATIONS

XV. Overview of self-help organizations

XVI. Bright Future Group: Birth of a self-help organization in Viet Nam

Annex List of organizations

 

Table Projected population of children with disabilities (1992)

Figures

  1. The programme intervention methodology of the National Forum
  2. The structure of the Disability Action Council of Cambodia
  3. Water pump repair class, Pursat, 1999
  4. Trainees need help to use a steep access ramp at MPPJ Tower, Petaling Jaya
  5. Trainees measure a ramp’s gradient to see whether it complies with Malaysia’s Code of Practice and Guidelines
  6. Samarthya members conduct an access audit of Dilli Haat
  7. Samarthya group members on a tour to Solan, Himachal Pradesh
  8. Gujarat Integrated Education Project growth, 1981-1990
  9. Gujarat Integrated Education Project growth, 1991-2000
  10. Group of visually impaired trainees learn how to give traditional Thai massage
  11. Quezon City - licensed physical therapist supervises interns in the management of therapy for children with disabilities, with their parents at their side
  12. The Fighter: Al-al - radiant in his victory against disability
  13. Lovely practices her painting, Savar, Dhaka

INTRODUCTION

The Asian and Pacific Decade of Disabled Persons, 1993-2002, was proclaimed by the Economic and Social Commission for Asia and the Pacific through resolution 48/3 of 23 April 1992. To achieve full participation and equality, which are the goals of the Decade, the Agenda for Action for the Asian and Pacific Decade of Disabled Persons was adopted by resolution 49/6 of 29 April 1993.

Since the inception of the Decade, ESCAP has been conducting reviews of the progress in achieving the goals of the Decade, in particular, the implementation of the Agenda for Action for the Asian and Pacific Decade of Disabled Persons. The 73 targets for the implementation of the Agenda for Action were adopted at the Meeting to Review the Progress of the Asian and Pacific Decade of Disabled Person, held at Bangkok in July 1995. A review of progress was again undertaken by the Meeting of Senior Officials to Mark the Mid-point of the Decade, held at Seoul in September 1997. In November 1999, a regional forum reviewed, revised and strengthened the targets. It adopted 107 strengthened targets for action for the Decade.

The Agenda for Action and the strengthened targets have become effective tools for Governments in the ESCAP region to guide their policies and the implementation of programmes concerning persons with disabilities. The multisectoral approach, which is reflected in the 12 policy categories in the Agenda for Action, has been well accepted by Governments of ESCAP members and associate members. The 12 policy categories specified in the Agenda for Action include:

• National coordination

• Legislation

• Information

• Public awareness

• Accessibility and communication

• Education

• Training and employment

• Prevention of causes of disability

• Rehabilitation (community-based rehabilitation, and health and social development)

• Assistive devices

• Self-help organizations

• Regional cooperation

The Asian and Pacific Decade of Disabled Persons will end in December 2002. Toward its conclusion, a regional exercise to measure achievements during the Decade has begun. In assessing its achievements, there is a need to look and see what changes have taken place in the lives of people with disabilities in the Asian and Pacific region. Quantitative data on the number of national coordination committees on disabilities formed, legislation passed, the number of children with disabilities in school and young adults in employment are important but they may not convey the essence of what the Decade has achieved for an individual, a family or a community. The main purpose of the case studies presented in this publication is to bring to life some of these changes.

This publication is also expected to provide an avenue for sharing ideas and experiences and for disseminating examples of good practice towards the achievement of full participation and equality of persons with disabilities. The case studies are based on documents contributed by Governments and non-governmental organizations, a United Nations specialized agency and self-help groups and organizations of people with disabilities. The experiences described reflect actions taken towards the achievement of equal opportunities and full participation of people with disabilities in the policy areas covered by the Agenda for Action. Noticeably, some of the case studies presented reflect action that addresses more than one of the policy categories, reflecting the inter-related nature of the activities undertaken. The case studies cover the policy categories of national coordination; legislation; public awareness and accessibility; education; training and employment; prevention of causes of disability; rehabilitation, including community-based rehabilitation and health and social development; and self-help organizations. Examples of good practice have been presented from Bangladesh; Cambodia; Hong Kong, China; India; Malaysia; the Philippines; Thailand and Viet Nam. It is expected that in a second publication more case studies will be solicited under all 12 policy categories of the Agenda for Action. Although each case study is set within a specific social and cultural context, the processes described and the lessons learned should have value across cultural and national boundaries.

It is hoped that the significant achievements of the Asian and Pacific Decade of Disabled Persons, 1993-2002, some of which have been described in this publication, will form a sound basis for continued progress towards achieving the equalization of opportunities and full participation of people with disabilities in all aspects of the development of the societies in which they live.

ESCAP wishes to thank those who have contributed examples of good practices. This publication will be disseminated to commemorate the conclusion of the Decade. Its title is “Pathfinders” because the subject of each case study is a pathfinder who is making a new path or showing a new direction in the promotion of the full participation and equality of persons with disabilities beyond the Asian and Pacific Decade of Disabled Persons.

 


PART ONE:

NATIONAL COORDINATION AND LEGISLATION

  I. OVERVIEW OF NATIONAL COORDINATION AND LEGISLATION

The establishment of a national coordinating body on disability frequently marks the point at which disability ceases to be viewed by that society as simply a welfare issue, or the concern of charitable organizations. Recognition of the right of people with disabilities to equal opportunities and full participation in all aspects of social and community life mandates a multi-sectoral approach to disability issues and concerns and their integration into mainstream development initiatives. Representation must include all concerned ministries, departments and governmental agencies, as well as substantial representation of relevant nongovernmental agencies (NGOs). Of necessity this must include self-help organizations of disabled people.

The case studies presented from Bangladesh and Cambodia indicate clearly that the initial impetus for the formation of national coordinating bodies may come from Government, as in Cambodia, or from the NGO sector, as in Bangladesh. What is important is that all parties work together to ensure that disability policy is developed and implemented, the passage of disability legislation promoted, and adequate resources for sustainability achieved. Both case studies report activities addressing multiple target areas of the Agenda for Action and coordination of an expanding network of disability concerned agencies. A key outcome was the increase in public awareness of disability issues and, most significantly, the increase in awareness of disabled people themselves of their rights and possibilities for development. Significant in both countries was the extension of concern to reach people with disabilities in rural, remote locations and in poor circumstances.

Legislation, in order to be effective, must be passed with an in-built implementation and enforcement mechanism to protect the rights of people with disabilities, including women and children and people with intellectual disabilities; to promote affirmative action in their favour and to eliminate discriminatory practices and architectural, social and communication barriers. The case study from Hong Kong, China, exemplifies legislation that, in its implementation, has the capacity to eliminate discrimination against people with disabilities. A significant feature of this case study was the detailed description of the measures taken to ensure wide public education and awareness concerning the legislation, a crucial element in its effective implementation.

II. THE NATIONAL DISABILITY FORUM OF BANGLADESH [1]

A. The nature of the problem

The National Forum of Organizations Working with the Disabled (NFOWD) in Bangladesh was formally established in 1991. It was established within the context of a country struggling with a population of 110 million, extreme poverty, low levels of education, poor standards of health, high rates of unemployment and limited resources. Historically, development issues were addressed by myriad non-governmental organizations (NGOs), more than 2000 funded by foreign donor agencies, and an even greater number of local organizations. Although innovative and effective, and working with credibility at grass-roots community level in many areas, they suffered from inadequate and uncertain resources and limited geographical coverage, and lacked a comprehensive focus and coordination.

Although the estimated population of people with disabilities was in excess of ten million, the issue of disability was almost completely neglected by both government and nongovernmental agencies. Where issues concerning disability were addressed it was within the framework of welfare and charity, seen as a separate issue which could only be addressed by specialized organizations, and having no place in the mainstream development agenda. There was no public awareness or concern with the situation of people with disabilities in the community and Bangladesh had not yet formulated disability legislation or policy. Disability data were fragmented and inconsistent, skilled human resources were severely limited, particularly in the rural areas, and disability was a low priority area for foreign aid donors. Lack of coordination of the limited resources available resulted in services that were primarily institutional and limited to urban areas. The needs of the majority of disabled persons throughout the country were ignored and unmet.

Limited government attention to issues concerning disability included the establishment of the Bangladesh National Council for the Blind, under the Ministry of Health. The focus was on prevention and cure with limited attention to the rehabilitation and education of blind persons in the community. In the 1980s limited initiatives were established between the Ministry of Social Welfare and the Department of Social Services and some NGO agencies working in the disability sector, but the lack of coherent planning, cooperation and coordination prevented this becoming an effective partnership. A coordinating organization of development NGOs was formed under the Association of Development Agencies in Bangladesh (ADAB) but disability issues were not a priority. This highlighted the need for a national coordinating body for NGOs working in disability, and was the stimulus for the founding of the National Forum of Organizations Working with the Disabled on 3 February 1991.

B. Main features of the organization

The National Forum is the leading national level coordinating body of NGO agencies working on disability issues in Bangladesh. It is registered with the Department of Social Services and the NGO Affairs Bureau of Bangladesh. With an initial membership of 22 member organizations, it now has a membership of 138 organizations. The National Forum has a two-tier structure, with a General Body and an Executive Committee. The General Body comprises representatives of all member organizations and is the supreme authority in respect of policy and decision-making. The Executive Committee is elected for two-year terms and is responsible for the operation and management of the forum. It is supported by professionals and officials of the National Secretariat located in Dhaka.

The objectives of the National Forum are:

• To uphold and safeguard the rights and interests of persons with disabilities;

• To advocate to government to protect the rights of persons with disabilities;

• To advocate to government to develop national policy and enact legislation on disability;

• To motivate and coordinate with government and non-government policy planners and decision makers, political and social leaders to initiate appropriate and effective programmes to ensure equal participation of persons with disabilities in all national development programmes and activities;

• To promote collection and appropriate use of disability information and statistics;

• To strengthen networking capacity and activity concerning disability-related issues;

• To develop disability-related human resources skills in organizations working with persons with disabilities;

• To facilitate capacity-building and institutional efficiency of member organizations;

• To promote mass public awareness on disability issues.

The key strategy of the National Forum is to create linkages between strategic agencies and interventions operating at both macro and micro level. This is achieved by forming “initiative groups” within the forum to facilitate and coordinate issue-based interventions at different levels. The initiative groups are assigned to develop conceptual frameworks and strategic plans for action and intervention in specified areas. They are composed of a pool of experienced resource people and professionals from member organizations. They undertake appropriate and effective planning to determine areas of specific need, and appropriate modes of response, that will result in effective intervention. The issues are addressed cooperatively with all concerned government and non-government agencies, by means of workshops, seminars, dialogues and discussions held at different levels. Activities engaged in include advocacy, public awareness campaigns, including the celebration of special national and international days of disabled persons, and issue-based discussions with authoritative bodies. Topics currently being addressed by initiative groups include community-based rehabilitation (CBR) initiatives, national coordination, disability policy and legislation, and inclusive education (see figure 1).

The essence of the work of the National Forum involves the development of cooperative and collaborative partnerships. The core partners are the member organizations. Their involvement in disability-related interventions generates subsequent linkages with many agencies operating at different levels and in a wide variety of areas. These partners include government ministries and departments, national and international organizations, funding agencies, professional organizations and individuals, and resource and support agencies. As disability is a cross-cutting issue it demands incorporation into development networks and forums on such other issues as education, gender and income generation.

Graphic showing relationships of the National Forum

Figure 1. The programme intervention methodology of the National Forum

The National Forum has also established formal partnerships with different government committees and bodies, including the National Coordination Council, the Government Organization-NGO Coordination Committee and National Disability Foundation.

C. Achievements

Since its inception in 1991 the National Forum has adopted a broad focus and addressed a wide spectrum of issues concerning the well-being of persons with disabilities. Bangladesh signed the Proclamation on the Full Participation and Equalization of Opportunities of People with Disabilities in the Asian and Pacific Region in 1993, and the work of the National Forum has been strongly guided by the Agenda for Action for the Asian and Pacific Decade of Disabled Persons, and the 12 target policy areas. The activities and achievements of the National Forum have been presented under these policy headings:

1. National coordination

The National Forum has been involved in a proactive cooperative and consultative role with government on disability issues related to legislation, policy, planning and implementation strategies. It has included the celebration of national and international disability events, and the organization of national and international workshops and seminars on disability issues. It has facilitated the inclusion of persons with disabilities in staff recruitment and training and in national development initiatives. It has provided technical and management support to the Government of Bangladesh in developing and updating national policy. The National Forum played an active role in mobilizing and activating the National Coordination Council (NCC) and is currently engaged with Government in the process of reforming the Council. The structure and function of the NCC has been mandated in recently enacted disability legislation. This should result in the NCC being more active and committed, and in a position to function more effectively to carry out the defined responsibilities of the agency.

The National Forum has played a significant role in the achievement of having information on disability incorporated into the national census that was completed in 2001. This involved advocacy and technical advice to the Ministry of Social Welfare and the National Census Board. It is clear that improvement is needed to ensure that the process is more systematic, but disability information is now included in national census data collection processes.

The National Forum has initiated dialogue with the Electoral Commission, which resulted in the issuing of a government circular to all local government authorities, requiring them to pay due attention to processes which would assist in the casting of votes by disabled people. This was accompanied by a media campaign on national television and satellite channels to draw attention to this issue, and to inform people with disabilities about their rights to vote.

The International Day of Disabled Persons has been regularly observed in Bangladesh. In 1999, the National Forum negotiated successfully with the Government to initiate a National Day for Disabled Persons, celebrated in April each year. The impetus for this action was the realization that, late in the Decade, many targets of the Agenda for Action for the Asian and Pacific Decade of Disabled Persons were unmet. It was hoped that raising the profile of disability issues would focus attention on the unmet needs and harness the will to address them. The observance of these two days occurs at all levels from the grass roots to the national level, and receives wide media coverage.

The National Forum developed the concept, and advocated strongly to Government, for the formation of a National Disability Foundation to support the work of NGOs in the area of disability in development. The NGOs in Bangladesh have been heavily dependent on foreign aid for support for their work. The Foundation has been initiated with a considerable financial contribution from Government, and will receive annual contributions. The Foundation will support initiatives and programmes on disability issues.

In 1999 the National Forum initiated the joint publication of a Mid-Term Review Report of the situation in Bangladesh concerning the achievements of the targets of the Agenda for Action of the Asian and Pacific Decade of Disabled Persons. The National Forum had expressed concern about the uncoordinated nature of activity in the disability sector, and the lack of documentation of progress. It was further concerned at the lack of participation of representatives from Bangladesh in the activities and meetings of the Economic and Social Commission for Asia and the Pacific (ESCAP) in implementation of the Asian and Pacific Decade. The National Forum expressed the urgent need for proper documentation and reporting of activities carried out, and an analysis of the current situation. They also saw the necessity to assess the areas of need identified by the unmet targets and to clarify the challenges for the future in terms of the Agenda for Action and the overall needs of the country in the disability sector. A comprehensive report was produced and printed, in collaboration with the Government and non-government agencies in the country. The report was presented at the ESCAP review “Meeting the Targets of the Asian and Pacific Decade of Disabled Persons and Equalization of Opportunities for Persons with Disabilities in the ESCAP Region”, held in Bangkok, 22 to 24 November 1999. The report was widely disseminated nationally and internationally.

2. Legislation

The National Forum, with the support of its member organizations, submitted the first draft of disability legislation to the Government of Bangladesh in 1996, to ensure the protection of the rights of persons with disabilities and to promote equal rights and opportunities for their full participation. A workshop was organized in 1996 to review the draft legislation. The workshop was attended by the Deputy Leader of the Parliament, the Secretary, Ministry of Social Welfare, and the Director General, Department of Social Services. Different aspects of the legislation were widely shared and analysed. The draft legislation was placed before the Deputy Leader of the Parliament, with copies to all members of Parliament, in December 1996 on the occasion of Universal Human Rights Day. The bill to pass the legislation was finally enacted in the session of the parliament on 4 April 2001, the National Day for Disabled Persons in Bangladesh. The legislation addresses the protection of the rights of persons with disabilities, prohibits abuse and neglect; mandates equal opportunity for participation of persons with disabilities in education, training and employment; provides for tax relief and subsidies; provides exemption of custom duties for disabled persons and their families on imported assistive devices; promotes elimination of architectural, physical and logistical barriers, thus facilitating access to the built environment, transport and the work environment; and calls for dissemination of information on the legislation.

3. Information and public awareness

The National Forum has placed particular emphasis on the assimilation, analysis and dissemination of disability information to many concerned disability organizations and has supported the initiatives of its member organizations in the information assimilation and dissemination process. Activities have included those noted below:

• A directory of organizations on disability issues was developed. This was developed in collaboration with ActionAid Bangladesh and the Ministry of Social Welfare. The National Forum has taken the initiative to update the directory annually, thus providing comprehensive, accurate information on national disability resources and service availability.

• The National Forum has regularly published issue-based communications for national sensitization and advocacy initiatives on disability matters. This has had an impact in developing positive and informed attitudes on disability issues and ways to address disability needs. The National Forum has also produced informative material on disability issues for publication in journals and in concept papers.

• The National Forum has worked actively to achieve wide coverage of disability issues in the mass media, and has organized mass media based public awareness campaigns, public demonstrations and issue-based campaigns at many levels. Documentaries, magazine shows, case studies and informative spots have been presented, frequently without cost.

• National newspapers have been motivated to give prominent coverage to national and international disability affairs.

• The National Forum has played a key role, in collaboration with government and non-government partners, in celebrating important disability events such as International and National Disabled Persons’ Days, White Cane Safety Day and other special events for persons with disabilities and the community as a whole.

4. Accessibility and communication

The Government has approved a Building Construction Code incorporating features necessary to ensure access of persons with disabilities, but there is as yet limited enforcement of the codes. The issue of accessibility is receiving increased attention and it is hoped that strong advocacy from the NGO disability sector will result in the necessary commitment from Government to pass amendments to the existing codes to ensure the inclusion of accessible features in all new construction. The National Forum plays an active role in promoting awareness of the codes and compliance with them. Achievements have included accessibility in some public places, with ramps installed at national monuments, auditoriums, markets and high-rise buildings. National level seminars and workshops have been organized by the Forum, in association with the Ministry of Social Welfare, to expand awareness of accessibility issues. These have been attended by architects, government employees, and NGO and media representatives.

5. Education

Bangladesh has been committed to the attainment of “Education for All” but, as has been the case in so many other countries in the region, this goal has not been achieved, although both formal and non-formal education have been strengthened and the overall literacy rate has increased. This has been achieved primarily through a policy of rapid increase in non-formal education programmes, funded in partnership with development agencies such as the Asian Development Bank. The Total Literacy Movement (TLM) is being implemented in all districts. In spite of these very positive initiatives, the educational needs of children with disabilities have not been significantly improved. Access to educational opportunity for these children is limited, particularly in rural areas. Teacher training does not address the issue of teaching children with disabilities and there is a lack of materials and equipment.

The National Forum has advocated strongly for access to education for children with disabilities. The influence of the Forum and the support of the member organizations has resulted in an increase in the number of projects and programmes developed to provide literacy and education to disabled children, and the enrolment rate of children with disabilities in education is increasing. The National Forum has taken a leading role in promoting the concept of inclusive education as a solution to the problem of improving access to education for disabled children. In order to promote this concept the National Forum has identified Inclusive Education as the theme of the National Day for Disabled Persons in 2001. Programmes have been planned and are being implemented in rural and urban areas throughout Bangladesh at the local and national level.

6. Training and employment

Many NGOs are actively engaged in providing vocational training and skill development for self-employment and income generating activities for persons with disabilities. Other agencies are engaged in the training of trainers who will carry out this work in local communities, strengthening the capacity of the NGOs. This training may increase skills in the identification, prevention and rehabilitation of persons with disabilities, increasing their opportunities to become independent within their communities. The National Forum frequently acts as a coordinating agency, creating links between member organizations and resource and training agencies.

7. Rehabilitation

The effectiveness of community-based rehabilitation (CBR) as a specific strategy for implementing rehabilitation activities in local communities has long been promoted in Bangladesh. It received increased impetus and wider acceptance from the emphasis on this approach in the Agenda for Action for the Asian and Pacific Decade of Disabled Persons. CBR programmes are being implemented across the country by both government and nongovernment agencies. In 1997 the National Forum, in collaboration with the Ministry of Social Welfare, organized the Second South Asian Conference on Community-Based Rehabilitation (CBR) for the Disabled with the theme of ‘CBR for the Disabled: Today and Tomorrow’. The conference was held in Dhaka, Bangladesh and was attended by 350 representatives of government and non-government agencies, as well as persons with disabilities, from Bangladesh, India, Nepal, and Sri Lanka. The conference was opened by Her Excellency, the Prime Minister of Bangladesh. The Dhaka Declaration was adopted, supporting the continued implementation of the Agenda for Action of the Asian and Pacific Decade of Disabled Persons and supporting the expansion of CBR initiatives to promote the full participation and equal opportunities of persons with disabilities in Bangladesh.

8. Regional cooperation

The National Forum has played a significant role in organizing workshops, seminars, and conferences within Bangladesh, and participating in similar activities within the region to promote the sharing of ideas, concepts, knowledge and experience. Contributions have been made to publications, journals and newsletters to facilitate wide dissemination of information. These networking and cooperative activities have been undertaken jointly by the National Forum and government agencies concerned with disability issues.

The National Forum has recently engaged in some new initiatives. It has joined a network established to facilitate inclusion of the concerns of children with disabilities in the focus of the Convention on the Rights of the Child. It has also developed a sustainable mechanism to strengthen the coordination between organizations working on disabilityrelated issues and organizations of self-help groups. The National Forum has also advocated to funding agencies to increase their attention to the initiatives of non-government agencies working on disability issues.

The National Forum has played a significant role in ensuring that disability is included as a development issue in Bangladesh. It has worked ceaselessly to increase the attention given to disability issues at all levels of government, and at non-government and international agency level as well. Development agencies have accepted the importance of disability issues and are now increasingly addressing the needs of disabled persons in development projects. The National Forum has played an important role in coordinating this activity and has extended its networks throughout the South Asian sub-region.

D. Key lessons learned

• Disability must be addressed as a development issue, addressed within mainstream development initiatives, and not as a separate segregated issue. In order to achieve this there must be effective collaboration and coordination of all sectors involved from grass-roots to national level. This has been the role of the National Forum, acting as the national coordinating mechanism. Where appropriate, particular disability issues have been integrated into mainstream development networks such as Education for All (EFA).

• Disability development work requires trained human resources. The National

Forum has played a key role in linking development agencies with disability training institutions to increase their capability to deliver effective services to people with disabilities.

• International mandates and conventions provide guidance and tools to promote disability development at the national level. The Asian and Pacific Decade of Disabled Persons, with its Agenda for Action and specific targets, has provided a blueprint for action and clear objectives for the achievement of equality and full participation of people with disabilities in Bangladesh. The National Forum has used the Decade mandate to advocate to and guide government and nongovernment agencies to promote disability development.

• The National Forum, with access to the extensive disability expertise of its member organizations, has assumed a leadership role, advising and collaborating with government on developing a rights-based approach to policy, and in the planning and implementation of disability initiatives.

• The National Forum has limited its role to national level coordination and creation of networks to link agencies concerned with disability development. It has not attempted to enter into the field of service provision but has worked to promote and facilitate the activities of its member organizations.

E. Sustainability

The growth of the National Forum from a membership of 22 organizations to 138, with a waiting list for potential members, clearly indicates the relevance of its vision and mission to its member organizations. Subscription-based, the organization has demonstrated a capacity to generate funds to increase the range and extent of its activities. The growing reputation of the National Forum has resulted in an increased capacity to obtain funding from the donor community, which has in turn allowed the National Forum to expand existing interventions and embark on new areas of activity. A respected partner in disability development, the National Forum is an active member of many government and national committees. It receives extensive financial support from government that enables it to develop long-term plans and strategies.

The National Forum works in close partnership with both government and nongovernmental agencies, operating in many capacities that include advocacy and coordination. This model of good practice can be used as an example to guide the establishment of an effective coordination mechanism in other countries of the region which share a similar political, economic, social and development context.

The rapid and continuing expansion of the National Forum within Bangladesh has taken place over a decade. It is clear from its current engagement with networks and forums outside the country that its influence will continue to expand within the region.

III. THE DISABILITY ACTION COUNCIL OF CAMBODIA [2]

A. The nature of the problem

Cambodia’s tragic and recent history of war has left it with the highest proportion of disabled people in the world. It has also left it without the full economic and social contribution of many of its citizens. The indiscriminate use of land mines by fighting factions during the country’s internal conflict caused losses among both the military and civilian population, and continues to do so. In 1999, decades after the end of fighting, Handicap International’s Annual Report stated that around 80 new mine victims were still being reported each month.

Between two and three per cent of the population – between 200,000 and 300,000 people – have physical disabilities. Approximately 40,000 to 50,000 are landmine survivors, many of them young men and women in their most productive years. About 60,000 persons have paralysis as the result of polio – a disease all but eradicated in the developed world. A further 100,000 people are blind and 120,000 are deaf [3] .

The high prevalence of disability within Cambodian society is a result of three factors:

• The past war casualties;

• The permanence of risks related to mines;

• The lack of prevention or primary care for various disabling diseases.

In 1996 a task force was established to assess the situation of people with disabilities in Cambodia. In a review of the situation it had become evident that projects and programmes addressing the needs of disabled people were inadequate and inequitable, and unsustainable in financial, technical and managerial terms. It was also clear that the enormous needs of disabled children and adults would grow even further in coming years, and it was anticipated that the gap between actual services and services needed would become even wider.

Some of the major problems identified included:

• A lack of services and programmes in remote and rural areas, which have the greatest concentration of disabled people, including those who have sustained landmine injuries;

• Services offered were not addressing the needs of people with all types of disabilities;

• A lack of data on the numbers of people with disabilities, as well as qualitative information on their situation in Cambodian society;

• A lack of technical and financial resources needed to provide adequate services;

• A long-term strategic plan for the disability and rehabilitation sector had not been formulated;

• Very limited employment and income generating opportunities for people with disabilities;

• A lack of legislative and enforcement instruments to protect the rights of persons with disabilities;

• Government had paid little attention to the needs of disabled people and had allocated very limited financial resources to this sector.

A fundamental problem was the lack of knowledge, expertise and trained human resources in the area of disability. The technical expertise, credibility and capability needed to develop a national plan on disability and to implement, monitor and evaluate it were lacking. This problem extended throughout government and non-government agencies, communities and individuals. Lack of coordination and cooperation between the many agencies working in the field of disability and rehabilitation had imposed serious constraints on the development of the sector.

In response to this situation a Ministry of Social Affairs, Labour and Veterans Affairs (MSALVA) task force recommended the establishment of the Disability Action Council (DAC). The Disability Action Council is a semi-autonomous national coordinating body, with representatives from government, non-government organizations, international agencies and individual members who are committed to the work of the Council in promoting the development of disabled persons in Cambodia. It has the mandate and the neutrality to undertake this vitally important coordinating role, and to promote the collaboration and cooperation of all key participants working in the field of disability and rehabilitation.

B. Main features of the organization

The guiding principle of the Disability Action Council is to promote the rights of disabled persons to full participation and equality in Cambodian society. The Council’s role is to work hand in hand with all groups working with people with disabilities, and at the same time to serve in a professional advisory capacity the Cambodian Government’s policy makers and legislators. The aim is to bring together government, national and international organizations, business, religious and local community leaders, and people with disabilities, to develop, implement, monitor and evaluate a national plan on disability issues.

The goals of the Disability Action Council are:

• To promote and encourage the development of policy recommendations including policy coordination, planning, monitoring of programmes, information utilization and dissemination, research and training;

• To review and evaluate on a continuous basis all existing policies, programmes and activities concerning people with disabilities, and to improve and extend services to areas previously unreached;

• To play a key role in the further development and implementation of a comprehensive national plan and in the development of national policy and legislation on disability and related issues which will serve as the basis of a network of services that can benefit all people with disabilities within their communities;

• To promote the participation of people with disabilities in all activities and to strive to remove the obstacles and inequalities they face, and to do this through awareness raising activities and advocacy;

• To encourage and facilitate national and international exchanges of experience on disability issues;

• To advocate for, and participate in, the allocation of resources to improve the living conditions of people with disabilities;

• To encourage the creation and strengthening of organizations of people with disabilities;

• To forge links with decision makers in all relevant sectors and at all levels, in order to promote effective coordination of policies, programmes and activities concerning people with disabilities;

• To re-evaluate, on a regular basis, the Disability Action Council’s structure and function in order to ensure its continued relevance and effectiveness (see figure 2);

• To establish and promote a comprehensive monitoring and evaluation system to ensure that all programmes and services in the disability sector are reviewed and assessed to determine their impact and effectiveness;

• To initiate a dialogue among concerned individuals and organizations to ensure that policy development is undertaken in a participatory manner and is appropriate to the Cambodian context;

• To implement and develop appropriate communication networks between the

Council, the secretariat, the technical and specialized committees and working groups, the concerned ministries, national and international organizations, and donor agencies.

Disability Action Council of Cambodia's structure

Figure 2. The structure of the Disability Action Council of Cambodia

C. Achievements

Since its establishment in 1995 the Disability Action Council has become one of the largest cooperative organizations in Cambodia, with 35 government and non-government organizations under its umbrella. The Council has made significant contributions to developments in the areas of disability and rehabilitation. Positive changes have taken place since the Council was established, through the actions of the secretariat and the advisory, technical and specialized committees and working groups, and by means of collaboration with many partners working in the disability field in Cambodia. There has been improved coordination of services and programmes for people with disabilities among the relevant service delivery agencies, and services are reaching more disabled people, particularly in remote areas.

Some of the major achievements of the Council include the development of a draft plan of action and draft legislation. The law will contribute to developing a policy framework and guidelines for inclusion and integration of people with disabilities into mainstream development programmes, including education, vocational training and employment. The aim of the draft law is to ensure the protection of the rights of all people with disabilities and prohibition of abuse, neglect and discrimination. It is hoped that this legislation will be enacted, widely disseminated and effectively enforced.

The national Cambodian Plan of Action for the Disability and Rehabilitation Sector is also in draft form. It is currently being developed with input from government agencies and non-government organizations, with the process coordinated by the National Council. It is hoped that the implementation of the national plan will see the integration of people with disabilities into the mainstream of social and economic development. It will also reveal sector-wide needs that will assist in attracting additional funding. It will work to improve service coordination, minimize overlapping and duplicated services, and to extend services to more remote geographical areas.

An Income Generation Project was initiated in August 2000. The project’s aims are two-fold – to help coordinate and extend existing income generation activities for people with disabilities and to develop a plan and funding proposal for a coordinated, nationwide economic development and income generating programme for people with disabilities.

Previous income generating activities of the Council included helping to facilitate links between its affiliated members and a marketing representative in Australia. The Council also assisted carpentry trainees at Maryknoll’s Wat Than Skills Training Centre to win a commercial contract from the World Food Programme to produce 6000 pallets for distribution, providing the staff and trainees of the production workshop with about five months work.

Through affiliated member organizations such as the Cambodian War Amputee Rehabilitation Society (CWARS), the Council also provides a number of skills enhancement classes such as a six-month sewing class (trainees are given their own sewing machines and taught mattress and clothes making) and a six-month motorcycle repair and maintenance class which provides excellent income opportunities for trainees. On completion, trainees receive all the necessary tools to set up their own workshop. In a hairdressing course, graduates are given all necessary equipment to set up their own salon, including scissors, combs, rollers, cosmetics and even a hair dryer that runs off a 12-volt battery. This class is very popular and provides a good income generating opportunity.

With funding from the World Rehabilitation Fund, the Council has initiated a Public Awareness Programme, in place since September 2000. The programme goals are to assess current activities on disability awareness, identify gaps, provide coordinating services, and develop a national strategic plan for a disability awareness programme in Cambodia. To help with public awareness the Council is also negotiating with Khmer and English newspapers to establish a regular column concerning disability issues in their papers.

PwDs examining water pump

Figure 3. Water pump repair class, Pursat, 1999

Other achievements include the instigation of a database programme in three provinces – Kampung Speu, Battambang, and Bantey Meanchey. The main task of the survey is to provide accurate baseline demographic data to be used in the formulation of service information, resource centres and a field manual.

The Council has also established a number of working groups that meet regularly. One such group is the Physical Rehabilitation Committee Working Group that is currently meeting on a regular basis to focus on a work plan to develop services (prosthetics, orthotics, wheelchairs and physiotherapy) available at the Provincial Rehabilitation Centre as well as discussing the role of health care professionals, and ways to develop links with other health service providers.

Funds have been secured through the Council for a new initiative to provide community-based care (group homes) for orphaned or abandoned children with disabilities. The project is being jointly administered by DAC and the NGO Youth With a Mission (YWAM).

In partnership with the Ministry of Education, Youth and Sport (MOEYS), DAC is also responsible for coordinating a project to develop education opportunities specific to the needs of children with disabilities. The aims of this project are to promote the life of children with disabilities to be free of discrimination; to promote their right to good education and to fully participate in the society; the development of training and teaching materials for children with disabilities; and policy development in the area of education for children with disabilities. This project is supported by United Nations Children’s Fund (UNICEF), the Nippon Foundation and United Nations Educational, Scientific and Cultural Organization (UNESCO).

The Council has worked hard to develop and improve relationships among donor agencies, government and non-government organizations, as an increase in resource allocation to the disability sector is essential. The Council has provided important advice and information to new organizations willing to implement programmes in the disability sector, and has encouraged them to become affiliated members of DAC. The Council has focused on building national human resource capacity in the area of disability, and has taken steps to ensure that people with disabilities are included in the planning processes of government ministries and community based programmes. Sharing of experiences, information and good practices has been actively encouraged among the many partners of the Disability Action Council.

One of the key achievements of the Council has been the development of a close relationship with the Cambodian Disabled People’s Organization (CDPO). This has ensured that the voice of people with disabilities is incorporated into all planning and activity of the Council, including the development of draft legislation on the rights of people with disabilities. The CDPO is an affiliate member of the Council, and has a major role on the Executive and Advisory Committee as well as membership on most specialized and technical committees.

D. Key lessons learned

• Legislation is necessary to protect the rights of people with disabilities, and it must be enforced, in order to eliminate discrimination.

• Strong ongoing and widespread advocacy is necessary to develop positive attitudes to people with disabilities and to raise public awareness about their concerns. This needs to be directed at policy makers, government and nongovernment organizations as well as the general public and people with disabilities themselves.

• A national plan is essential to prevent both overlap and gaps in services, and to ensure coordinated development of services that reach disabled people in all parts of the country, including the remote and rural areas. This is also necessary to ensure that particularly disadvantaged groups, such as women and children with disabilities, are not neglected in the planning and implementation process.

• Government commitment to disability development must be achieved. The government has crucial control of resource allocation, and strong advocacy may be needed to achieve a larger budget allocation for long term investment in the development of social services.

• Accurate data are needed to make realistic plans. Workers who collect disability data need to be trained, to avoid severe under-estimation.

• Identification of priority areas for action is important. One of the most severe problems faced by people with disabilities is their lack of access to jobs and income generation opportunities.

E. Sustainability

The Disability Action Council is a semi-autonomous body, established by Government, as a demonstration of government commitment to disability development in Cambodia. The structure of the Council mandates partnership with all the key stakeholders, including national and international non-government and donor agencies working in the disability field. These collaborative partnerships strengthen the Council, and result in better planning and use of resources. New organizations and agencies strengthen the Council and ensure that it remains widely representative of disability interests throughout the country.

The strong partnership between DAC and the Cambodian Disabled People’s Organization ensures that people with disabilities are actively involved in all decision-making concerning disability issues, and that their voice helps to determine policy direction and action taken by the Council.

IV. ELIMINATING DISCRIMINATION THOUGH LEGISLATION IN HONG KONG, CHINA [4]

A. The nature of the problem

Basic economic, social and cultural rights of people with disabilities are not upheld in many societies. This results in discrimination against them in terms of the right to employment, access to regular education, participation in community activities and access to community facilities. Discrimination may be direct or indirect. Some of the reasons for this are noted below:

• Members of the public do not accept people with disabilities because they do not understand disability and have misconceptions about it.

• Many facilities are not accessible to people with disabilities because no consideration is given to their special needs when buildings, transport and infrastructure are in the design stage.

• The special needs or special situations of people with disabilities are not taken into account in the formulation of policies, systems and measures, which means that people with disabilities cannot benefit from them. This may result in marginalization.

• For historical reasons, people with disabilities have not had equal opportunities.

They have been disadvantaged in areas such as access to education, knowledge and skills, and financial well-being.

In Hong Kong, China, before 1995, people with disabilities faced significant discrimination in various areas of their lives. In some cases this extended to harassment. The law provided little protection against discrimination and did not guarantee equal opportunities to people with disabilities. Incidents demonstrating discrimination included organized protests from residents of private housing estates in Hong Kong, in 1992 and 1993, attempting to prevent the establishment of a resource centre for parents of children with Downs’ Syndrome, a hostel for people with intellectual disabilities, and an activity centre for people who were recovering from mental illness.

B. Main features of the Disability Discrimination Ordinance

To address the serious problem of harassment and discrimination, the Government of Hong Kong, China decided that there was a need to enact anti-discrimination legislation. The Disability Discrimination Ordinance (DDO) was enacted in 1995. In drafting this legislation the circumstances in Hong Kong, China were take into account, and reference drawn from anti-discrimination legislation passed in Australia in 1992.

The objectives of the Disability Discrimination Ordinance are as follows:

• To eliminate discrimination against persons, on the grounds of disability, in the areas of employment, accommodation, education, access to premises, partnerships, vocational training, clubs and sporting organizations; the provision of goods, services and facilities; the performance of government functions and the exercise of its powers;

• To ensure, as far as practicable, that persons with disabilities have the same rights before the law as the rest of the community;

• To promote recognition and acceptance within the community of the principle that persons with disabilities have the same fundamental rights as non-disabled persons.

The Disability Discrimination Ordinance contains provisions to cover discrimination on the grounds of disability. In addition it contains provisions protecting people with disabilities from harassment or vilification on the grounds of their disability. The legislation does not impose requirements on employers, developers, service providers and others to provide more jobs or better facilities for people with disabilities. Rather, the legislation makes it unlawful for disabled people to be treated less favourably than others, on account of their disability, in circumstances that are the same or not materially different. The legislation thus protects the rights of such persons not to be discriminated against, rather than requiring the general provision of services to meet their needs.

The Disability Discrimination Ordinance includes a very specific definition of the meaning of the word “disability”. It includes:

• Total or partial loss of the person’s bodily or mental functioning;

• Total or partial loss of a part of the body;

• The presence in the body of organisms causing disease or illness;

• The malfunction, malformation or disfigurement of a part of the person’s body;

• A disorder or malfunction that results in the person learning differently from a person without the disorder or malfunction;

• A disorder, illness or disease that affects a person’s thought processes, perceptions of reality, emotions or judgments that result in disturbed behaviour

It includes a disability that presently exists, previously existed but no longer exists, or may exist in the future, or is imputed to a person.

Under the Disability Discrimination Ordinance, direct and indirect discrimination are both unlawful acts. Direct discrimination means treating an individual with a disability less favourably than a non-disabled person in comparable circumstances. Indirect discrimination means imposing the same requirement or condition on everyone in such a way that it has an unfair effect on persons with a disability. Harassment and vilification against people with disabilities are also unlawful under the Ordinance.

The Equal Opportunities Commission (EOC) is responsible for implementation of the Disability Discrimination Ordinance. The Equal Opportunities Commission is a statutory body, established in 1996, to implement the Sex Discrimination Ordinance and the Disability Discrimination Ordinance. Although it is funded by the Government, it has an independent status. The Equal Opportunities Commission works towards the elimination of discrimination on the grounds of gender, marital status, pregnancy, disability and family status. Its functions in relation to disability are to:

• Work towards the elimination of discrimination against people with disabilities;

• Keep under review the working of the disability discrimination legislation;

• Receive complaints, provide assistance and conduct investigations under the legislation.

• Develop and issue codes of practice, and conduct public awareness education research into disability discrimination issues.

C. Achievements

In the past few years the Equal Opportunities Commission has worked unceasingly to address the problems of discrimination in a number of areas. Attention has been focused, in particular, on employment, education, access, transport and information technology.

With regard to employment, the Equal Opportunities Commission developed a Code of Practice on Employment, under the Disability Discrimination Ordinance, which provided guidance for employers and employees. It has held a series of talks and seminars to enhance the understanding of employers and employees with regard to the Ordinance. Recently it has examined ways of helping small and medium enterprises to implement policies on equal employment opportunities. In the area of education, the Equal Opportunities Commission has been working in close cooperation with the government, and has contributed views on the school-based integrated education programme that is currently being implemented in Hong Kong, China. A Code of Practice on Education was recently developed and became effective in July 2001.

The issue of physical access and transport has given rise to many cases of complaints, where the resolution has resulted in marked improvement in community facilities. The Equal Opportunities Commission has also engaged in direct liaison with relevant government departments, and has urged them to develop specific policies and measures to improve access and transport facilities. A further initiative with the department responsible for housing resulted in a survey on accessibility and facilities, which it was hoped would lead to improved accessibility for people with disabilities living in public housing estates. In relation to the recent strong emphasis by government on promoting information technology, the Equal Opportunities Commission has expressed concern, and requested that government ensure that the special needs of people with disabilities are addressed, and relevant policy is developed. It has also advocated the adoption of the concept of universal design.

The Equal Opportunities Commission has responded to many specific incidents of discrimination, compiled study reports and made recommendations to avoid similar occurrences in the future. Two major target categories for discrimination against people with disabilities have included people with mental illness and people living with HIV/AIDS. In some cases intervention by the Equal Opportunities Commission has been made more difficult by the reluctance of the targets of discrimination to come forward and lodge complaints, fearing further harassment if their identities were disclosed. Publication of a study report on the issue of opposition to the establishment of a health centre to serve people with HIV/AIDS served the purpose of publicizing both the issue and the condemnation of discriminatory acts, even in a situation where no complaints had been lodged. On the issue of HIV/AIDS, the Equal Opportunities Commission has been actively engaged in the development of a plan for the prevention and treatment of HIV/AIDS in Hong Kong, China. Emphasis has been placed on protecting people who are living with HIV/AIDS and who are vulnerable to discrimination. The protection of privacy in legal proceedings of those infected with the disease is also being advocated. In addition, the Equal Opportunities Commission has played an active role in international conferences on AIDS, including the United Nations General Assembly Special Session on HIV/AIDS, held in June 2001.

Major activities addressing discrimination against people with mental illness have included organizing a series of seminars for patients, ex-patients and family members, to enhance their understanding of the protection that is provided by the law. A team of professionals was commissioned to conduct a survey on the various aspects of discrimination encountered by this group, and to organize seminars for journalists to encourage impartial reports and positive portrayal of people with mental illness. Collaboration between the Equal Opportunities Commission and the Immigration Department was undertaken after the wrongful repatriation of an autistic boy to mainland China. A study was conducted to determine whether the policies, operational procedures, staff management and staff training were in keeping with the principles of equal opportunities, and to make recommendations to solve the problem of the lack of sensitivity evident in the handling of issues concerning people with disabilities.

Initial public reaction to the Disability Discrimination Ordinance and other anti-discrimination legislation, when they were first introduced, was marked by ignorance, skepticism, misunderstanding and resistance, in some quarters. In the ensuing four-year period of implementation, the system for handling complaints under the Equal Opportunities Commission has been firmly in place, helping aggrieved persons to seek redress for individual acts of disability discrimination. As at 30 June 2001, the Commission had received more than 1,100 complaints lodged under the Disability Discrimination Ordinance. The number of complaints received has increased steadily on an annual basis. The success rate for cases that proceeded to conciliation was 65 per cent, a rate comparable to that achieved by the more established jurisdictions overseas. Of the cases in which follow-up action was taken, 83 per cent have been successfully resolved. Where conciliation has not been successful, the Equal Opportunities Commission has power, under the Disability Discrimination Ordinance, to grant various forms of assistance to applicants who have lodged complaints in writing to the Commission, for investigation and conciliation. Assistance may vary from the provision of legal advice to representation in legal proceedings by lawyers and barristers, briefed by the Commission. By granting legal assistance to applicants when conciliation has been unsuccessful, the Equal Opportunities Commission is able to establish case precedents in the courts on the anti-discrimination laws.

A primary area of the public education programme of the Equal Opportunities Commission is the promotion of equal opportunities from childhood. The Commission believes that the younger generation will be the catalyst for change in challenging traditional beliefs and values. A wide range of initiatives has been designed for children and young people, to cultivate values which foster respect for human dignity and empathy for the less advantaged, such as people with disabilities. Some examples of activities organized to promote equal opportunities for people with disabilities included:

• Promoting equal opportunities in primary schools by means of a puppet show project and “Jumbo Kids Theatre” performances;

• Promoting equal opportunities to youth through school talks and joint summer projects with schools;

• Offering funding support to activities promoting equal opportunities, and to encourage community participation;

• Organizing community ‘roadshows’ to promote the concept of equal opportunities.

Another strategy employed by the Equal Opportunities Commission to facilitate public education on eliminating disability discrimination was to develop a module for training trainers to work in the community. Training materials include a videotape entitled “Training Module on Eliminating Disability Discrimination”, a training manual, an information booklet, transparencies and handouts. The videotape contains 11 stories on discrimination and harassment. The strategy was launched in 2000, and explains the legal concepts under the Disability Discrimination Ordinance, and helps users understand the wider issues of disability discrimination and how to deal with problems that may arise. In addition, the “Training Module for Children Focusing on Equal Opportunities on the Grounds of Gender and Disability” was also developed to provide a practical guide for kindergarten teachers. Five training workshops have been held for 1,100 teachers from more than 500 kindergartens. The training module has been used by more than 60 per cent of all kindergartens in Hong Kong, China.

Research studies have played an important role in developing knowledge, monitoring attitudes and establishing benchmarks. These have provided guidelines for future advocacy and public education programmes and activities. The Equal Opportunities Commission has commissioned a number of specific disability-related research studies, covering issues such as the employment situation of people with disabilities, obstacles faced by people with disabilities in non-employment situations, insurance issues, and the attitudes of students towards people with disabilities.

D. Key lessons learned

Although the public of Hong Kong, China, has become more aware of the rights of people with disabilities since the introduction of the Disability Discrimination Ordinance, many challenges and obstacles remain in the pursuit of the elimination of disability discrimination, and the achievement of equal opportunities for people with disabilities to participate fully in society. The Equal Opportunities Commission has identified two key problems and areas of concern, the issues of anonymity and legal assistance.

The Equal Opportunities Commission is concerned that people with HIV/AIDS or with mental illness may be deterred from pursuing their rights if conciliation fails, and it is necessary to pursue claims through the civil courts. Reliance on litigation for protection of human rights is difficult owing to the inherent privacy problems involved in the process. Breach of privacy is often the first step that leads to discrimination. When the status of a person with mental illness or HIV/AIDS is known, then a range of detrimental events may occur, including loss of employment, housing, reduced access to insurance and finance, and exposure to harassment and even to violence. More rigorous public education programmes are needed to promote acceptance and understanding of people with these particular disabilities. There is a need to target all sectors of the community in order to remove this deeply rooted social stigma.

The Equal Opportunities Commission is limited in its capacity to ensure that people who cannot afford lawyers have accessibility to the courts, in cases of claims concerning disability discrimination. The Commission is a statutory body funded by the Government of Hong Kong, China but it does not have a separate budget designated for litigation. Litigation expenses are met by redeploying funds from within its regular budget. As it is not a litigation agency, it undertakes only strategic litigation, and only grants legal assistance in cases where public interest is involved or where a precedent needs to be set. It is necessary therefore to ensure that other meritorious cases are provided with legal assistance through other channels, as legal aid is only granted on a means tested basis. A resolution to this problem must be found.

E. Sustainability

The Equal Opportunities Commission considers training of government personnel the key to sustained improvement in the development of policy and decision making that is in line with the principle of equal opportunities and the prevention of discrimination against people with disabilities. Since its establishment, the Commission has organized many seminars and workshops to provide training for managerial level personnel in organizations and in Government. It has recently established a training unit within the Commission to specifically extend this area of its work. It is hoped that, through training, the essential message of the Commission will be conveyed. This message states clearly that in the development of all policies and decisions the special needs of people with disabilities must be considered and taken into account, and barrier-free design should be adopted whenever possible. Only then will the marginalization of people with disabilities be avoided.

Undoubtedly legislation is important in achieving the goal of eliminating discrimination against people with disabilities. But to create a society where there is no discrimination, public education is equally and critically important. The Equal Opportunities Commission has created a large number of promotional and educational materials. These included a TV series, training modules, CD-Roms, periodicals and pamphlets. It has also organized many promotional and educational activities. It is the concern of the Commission to make the public understand that people with disabilities, like other people, should be entitled to the same basic rights. The public must understand that their abilities and ways of expression are not necessarily of a lower standard than those of other people, but may be different. The public must further understand that, at present, there are many things that people with disabilities cannot do, not because they are less capable, but because they are hindered by many barriers in the surrounding environment. Therefore it is clear that, whether one looks at the situation from the point of view of the rights of people with disabilities, or from the viewpoint of developing the potential of society as a whole, creating a society with no discrimination will benefit everyone.


NOTES

1 Based on a paper prepared by A.H.M. Noman Khan, Secretary General, National Forum of Organizations Working with the Disabled (NFOWD) and Executive Director, Centre for Disability in Development (CDD), and Nazmul Bari, Assistant Director, CDD, Bangladesh.

2 Based on a paper prepared by Ouk Sisovann, Executive Director, Disability Action Council (DAC) and Helen Pitt, Adviser, DAC, Cambodia.

3 Statistics provided by Cambodian Disabled People’s Organization.

4 Based on a paper prepared by Stephen Pang, Commissioner for Rehabilitation, Health and Welfare Bureau, Government Secretariat, Hong Kong Special Administrative Region, China, for presentation at “Campaign 2001 for the Asian and Pacific Decade of Disabled Persons, 1993-2002”, Hanoi, 10-15 December 2001.

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