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Meeting of the Ad Hoc Committee, 16 - 27 June 2003 : NGO Bulletins :

Disability Negotiations Bulletin

Volume 2, No. 5 - June 20, 2003

Today's Weather
Light Rain
High: 70° F
Low: 61° F

Ad Hoc Committee Meeting

Today's Schedule

10 AM - 1 PM

Elements to be Considered
Discussion

3 PM - 6 PM

Follow Up and Monitoring
Discussion

 

Disability Awareness Badge of Honor

Kofi Annan
for "Convention? Yes!"
and Tunisia for echoing "nothing about us without us"

Disability Awareness Badge of Dishonor

Australia
for continued reference to an annexation of disability rights to existing documents

 

Kofi Annan Says:
"Convention? YES!"

Kofi Annan shares a light moment with Ambassador Gallegos of Ecuador
Photo by Dalma Foldes, Landmine Survivors Network, June 19, 2003


Women and Disability in the United States

Excerpt by from Disability World (www.disabilityworld.org) By Cindy Higgins, Research Information on Independent Living Project

  • Less than one-quarter of women with severe disabilities had a job or business compared with 27.8% of men with a severe disability.
  • A less severe disability resulted in 68.4% of women to be employed or have a business versus 85.1% of men with comparable disability.
  • Women with disabilities were represented the most in traditionally female-dominated professions, such as registered nurses, elementary and secondary teachers, and librarians.
  • Women with severe disabilities had the lowest earnings of any group with median monthly earnings of $1,000.
  • Men with severe disabilities had higher earnings than women with non-severe disabilities.
  • About 40% of women with a severe work disability lived in poverty. Of those who received work disability benefits from Social Security, more men received higher disabled worker benefits than women. Women with disabilities received lower rates then men.

Disability Rights Are Women’s Rights

All women, including women with disabilities, share the dream of full equality. Women deserve a future with economic and personal independence, educational and employment options, justice in the courts, unrestricted access to information, reproductive freedom, and full participation in society.

While all women face barriers to achieving this equality, women with disabilities face multiple forms of discrimination, making it even more difficult. Women with disabilities are disproportionately affected by unequal wages, unemployment, poverty, sexual and physical abuse, lack of access to adequate health care, and many other impediments to equality.

The U.N. Convention to Eliminate All Forms of Discrimination Against Women (CEDAW) is an important step towards women’s equality. CEDAW is the most comprehensive and detailed international agreement that seeks the advancement of women. It establishes rights for women in areas not previously subject to international standards and is a powerful tool in holding governments accountable for improving the status of women. It aims to abolish discrimination against women in political, economic and social arenas and ensures women’s access to their rights.

However, CEDAW lacks specific protections needed for women with disabilities. Women with disabilities need both CEDAW and a Convention on Disability Rights in order to gain meaningful access and to enjoy the full benefits of their basic rights. Additionally, states must commit to fully enforce these conventions once they are ratified.

A Convention on Disability Rights would eliminate architectural and social barriers—discrimination, segregation from society, economic and political marginalization— that prevent women with disabilities from living independent lives. For example, a disability rights treaty would make a critical difference in the area of education. Studies have shown that people with disabilities are less likely to receive adequate education and they often leave school with fewer skills and qualifications. For women and girls with disabilities this problem is compounded by sex discrimination. They face not only exclusion and lack of access to resources and their rights, they also face deliberate and active measures taken against them. Some such measures include involuntary institutionalization, forced abortion and sterilization, and psychiatric drugging. A Disability Rights Treaty working synergistically with CEDAW would lead to significant progress in ensuring women with disabilities access to their rights and would offer protection from human rights abuses.


People with Down's Syndrome Disrupt Screening Conference

By: Simone Aspis and Anya Souza, Human Genetics Alert

Woman with Down's syndrome tells doctors: 'I am a person not a disease.'

On May 19th, a group of people with Down's Syndrome and their supporters disrupted the International Down Syndrome Screening Conference at Regents College in London. This is the first time people with Down's Syndrome have made such a protest and is a major new step in the debate about genetics, eugenics and the rights of disabled people. As a result of the protest, the conference organisers allowed Anya Souza to speak from the platform. Ms Souza, who is a trustee of the Down Syndrome Association, told the doctors that she opposes Down's Syndrome screening and that people with Down's Syndrome are people not medical problems. Her speech was warmly applauded by the conference delegates

The protesters consisted of three people with Down's Syndrome, another disabled person with learning disabilities and their families and supporters. They had written to the conference organisers in advance and asked to speak, but were refused by the main organizer. It is unacceptable that doctors discuss better ways of preventing people with Down's Syndrome being born, whilst excluding their voices from the debate. This runs directly counter to one of the main demands of disabled people: 'Nothing about us without us'. The protesters expect that their action will persuade the conference organisers to ensure a full debate at next year’s conference with proper representation of disabled people with learning difficulties. This should be the start of a national debate on prenatal screening.

Women with Disabilities: Opportunities and Challenges in the Development of a Convention

The government of South Africa and the United Nations Development Fund for Women (UNIFEM) is hosting a luncheon briefing on Women with Disabilities: Opportunities and challenges for women’s rights activities in the development of a Convention on the human rights of people with disabilities. Several distinguished speakers are scheduled to participate, including: Roxanne Carrillo, Advisor to the Executive Director/Human Rights, UNIFEM; Sebenzile Matsebula, Director of the Office on the Status of Disabled Persons, The Presidency of South Africa; Dr. Theresia Degener, Professor of Law, Germany, Co-author, OHCHR report "Human Rights and Disability"; Anuradha Mohit, Special Rapporteur, National Human Rights Commission, India; Charlotte Bunch, Executive Director, Center for Women’s Global Leadership, US; and Charlotte McClain, Commissioner, Human Rights Commission, South Africa.

According to Ms. Matsebula, the moderator of the briefing, this issue is particularly timely and important because the disability community needs to "begin mainstreaming the issue of women with disabilities into the [general] women’s movement. Women with disabilities and non-disabled women share a common vision, similar issues and challenges. While the women’s movement has gained world recognition, issues of women with disabilities have been marginalized."

The luncheon is schedule for today, June 20 th , from 1-3 PM in the West Terrace Room in the Delegates Dining Room (4 th floor, UN Secretariat) and is open to all participants.


Supporting Organizations

bulletAmerican Association of People with Disabilities
bulletAmerican Council of the Blind
bulletCenter for International Rehabilitation
bulletChina Disabled Persons' Federation
ouncil of Canadians with Disabilities
bulletDisabled Peoples' International
bulletEuropean Disability Forum
bulletInter-American Institute on Disability
bulletLandmine Survivors Network
bulletMental Disability Rights International
bulletPeople Who
Rehabilitation International
bulletSupport Coalition International
bulletUnited States International Council on Disabilities
bulletWorld Blind Union
bulletWorld Institute on Disability
bulletWorld Network of Users and Survivors of Psychiatry


Handicap International

In 20 years of existence, Handicap International has developed holistic disability programs in 45 countries (Eastern Europe, Latin America, Asia, Africa, and France). Our programmes are based in partnership with Disabled People’s Organisations, Non-Governmental Organisations, Governmental Organisations and service providers. Our aim is to raise the disability questions as a cross-cutting issue in all sectors and at all levels. To achieve this, strong networking is crucial.
Handicap International follows the "twin tracks" approach to disability and development:

  • Activities must ensure that disability issues are taken into active consideration in mainstream development work.
  • Providing active support to specific initiatives for the empowerment of people with disabilities is a second fundamental issue.

Some can argue that rather than creating another specific convention, we should lobby to ensure the full implementation of conventions. But, the appalling situation of people with disabilities in the world proves that it is now essential to establish a thematic convention:

  • To drive attention to the existence of the disabled population
  • To ensure the equality towards their rights as everyone else
  • To facilitate and mainstream the disability issues within the 6 existing United Nations human rights instruments

The drawing-up of a UN convention on the human rights of people with disabilities is a fantastic opportunity to create new dynamics and mobilize all stakeholders around the question of disabled people’s rights.

Based on 20 years of a large range of practical experiences in more than 50 countries mainly in the developing world, the Handicap International participation in this second Ad Hoc Committee is intended to help promote a fully comprehensive convention, including political, civil, economic, social and cultural rights. This would achieve non-discrimination, accommodation of the difference and full participation for all.

As a contribution to this event, Handicap International, in close collaboration with the Landmine Survivors Network, will be circulating information (in English and French) about this second Ad Hoc Committee throughout its entire network.

Claude Simonnot (csimonnot@handicap-international.org)
Philippe Chervin (pchervin@handicap-international.org)


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