Sustainable Livelihoods

Jakarta, 15 to 17 January 2002

Interregional Consultative Expert Meeting
on disability-sensitive policy design and evaluation
for sustainable livelihoods for all in the twenty-first century

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Video Introduction to:
Integration of persons with disabilities in the global economy

by
María Cristina Sará-Serrano Mathiason
President
Associates for International Management Services

The issue of sustainable livelihoods for persons with disabilities is central to the equalization of opportunities for persons with disabilities. If persons with disabilities are not empowered to earn income and develop their economic capacities, they will not be independent and they will not be equal.

As we will see, the Standard Rules for the Equalization of Opportunities for Persons with Disabilities spend considerable time in defining what are government responsibilities for ensuring that persons with disabilities have access to all of the means of production and, accordingly, can maintain sustainable livelihoods.

But before we go into details, let me place this in context.

The Standard Rules were adopted less than ten years ago. They were a compromise at the time. Many advocates for the rights of persons with disabilities were convinced that we should have a human rights convention on discrimination against persons with disabilities like other groups of persons whose exercise of their human rights was impaired.

The time was not ripe for a convention. Persons with disabilities were still seen as dependent objects, more of a charitable concern and to an extent a social problem rather than the assets to society that we are. Few governments would consider taking on a legal obligation to eliminate barriers to equal enjoyment of rights.

The compromise was this: there would be a normative document, the Standard Rules, but it would not be legally binding. It would be a kind of human rights instrument, but would not be part of the human rights regime that the United Nations supports.

Times have now changed. We are recognized as important. The stereotype of the weak and pathetic person with a disability has been replaced with a more realistic image of strength and contribution.

A good example is the replacement of the WHO's system of indicators on disabilities that was called the International Classification of Impediment, Disability and Handicap, that focused on us as objects, with the new International Classification of Functioning, Disability and Health.

There are other factors that have made the issue important. Disability is related to age and the world is undergoing a steady, and very rapid, aging of its population.

But the most important factor, I think, is that we persons with disabilities have gotten ourselves sufficiently well organized at the national level that we are finally being heard by our governments.

After almost ten years, we have learned that the Standard Rules, while important, are not sufficient to ensure our enjoyment of rights. I am happy to report that the General Assembly in December decided to begin the process of elaborating an international human rights convention to prevent discrimination against persons with disabilities. The initiative came from the Government of Mexico. Its new president, Vicente Fox, in his statement to the General Assembly called for a convention. He was clearly influenced by the very well organized organizations of persons with disabilities in his country, with whom I am proud to say I have worked.

Here is what the resolution that was adopted says:

Noting with satisfaction that the Standard Rules on the Equalization of Opportunities for Persons with Disabilities play an important role in influencing the promotion, formulation and evaluation of policies, plans, programmes and actions at the national, regional and international levels to further the equalization of opportunities by, for and with persons with disabilities,

Recognizing that, despite different efforts made to increase cooperation and integration, and increasing disability awareness and sensitivity to disability issues, since the adoption of the World Programme of Action concerning Disabled Persons by Governments, bodies and relevant organizations of the United Nations system and non-governmental organizations, these efforts have not been sufficient to promote full and effective participation and opportunities for persons with disabilities in economic, social, cultural and political life,


Decides to establish an Ad Hoc Committee open to the participation of all Member States and observers to the United Nations, for the purpose of elaborating a comprehensive and integral international convention to protect and promote the rights and dignity of persons with disabilities, based on the holistic approach in the work done in the field of social development, human rights and non-discrimination;

Elaborating international conventions usually takes time. This is because in a convention, States take on obligations that are legally binding. They are particularly careful in those areas that might affect national laws, policies and procedures.

Your expert group is the first to be convened after the General Assembly resolution was adopted. You have the opportunity to help shape the discussion in what is clearly one of the most difficult areas to draft language.

I don't have to tell you that the issue of economic opportunities for persons with disabilities is one of the most difficult. It is probably the area where progress has been the least. There are many reasons for this. Some have to do with sequence: until workplaces were physically accessible, persons with physical disabilities simply could not work there.

Most, however, had to do with the fact that most economic activities take place in the private sector. When governments regulate, there is often opposition from businesses on the grounds that accommodations for persons with disabilities will increase costs. It is the area where the stereotypes about disability are probably strongest.

When the Convention is drafted, this will have to be taken into account.

Without a doubt, the starting point will be the Standard Rules. This is because it is what they call in the United Nations "agreed text", language which governments have already found acceptable. It is also because we have had almost ten years of experience trying to implement the Rules and have learned which are easy to implement and which are less easy.

We will be presenting the Standard Rules as they apply to livelihoods. You will see that many do. From time to time we will stop the presentation to allow us to discuss points, using Internet technology.

One of the things that has changed since we worked on the Standard Rules in Vienna in the early 1990's has been the emergence of the Internet. Even though I can no longer travel because of my disability, I can still participate using this new technology and I have been able to co-found a company that mostly works through the Internet. This has clearly made the world more accessible for those of us with motor impairments, but it also means an effort to make sure that the new technologies themselves are accessible to us.

As you look at the Standard Rules, I would like to encourage you to ask, are these sufficient? Can we reasonably ask Governments to take these on as a legal obligation? What is missing? What is unnecessary?

At the end of your meeting, I hope you will be able to make concrete recommendations that can be made available to the governments working on the new convention. If you do, you will be contributing.in a major way to removing the remaining obstacles to our full integration into development and the economy.

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